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Book by Bearison David J
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Présentation de l'éditeur :
Over 50,000 children die of medical causes each year in the U.S. and 85 percent of them do so in hospitals. While great strides have been made in palliative care, many of these children still suffer considerably in the last months of life. Studies have found that pediatricians, who often do not expect to confront death on a frequent basis, and other hospital staff typically feel inadequately trained to manage the situation and are emotionally unprepared for the death. All of the feelings associated with caring for a chronically ill child, guilt, anger, frustration, ambivalence, exhaustion, are magnified when a child's life can no longer be prolonged. When Treatment Fails will be based directly on the voices of those who care for children at the end of their lives, the doctors, nurses, social workers, pastoral counselors, and psychologists. Centered around seven cases, Bearison will elicit and record the stories of these professionals about their experiences caring for a patient. The narratives will illustrate how clinicians coming from different professional roles speak about the biological, psychological, spiritual, and social dimensions of caring for terminally ill patients. Bearison will analyze their ways of making sense and giving meaning to their difficult experiences, unearthing common and distinct themes and issues across disciplines. The book will also identify the ways their interdisciplinary teams facilitate or hinder each others work, and to what extent greater reciprocity can be achieved in providing the highest quality palliative care.
Revue de presse :
...a remarkable treasure trove of lived experiences of clinicians from which novice and seasoned clinicians may learn and deepen their insight about end-of-life care of children. (JAMA)
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- ÉditeurOxford University Press Inc
- Date d'édition2006
- ISBN 10 0195156129
- ISBN 13 9780195156126
- ReliureRelié
- Nombre de pages289
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When Treatment Fails: How Medicine Cares for Dying Children
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(2006)
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ISBN 13 : 9780195156126
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When Treatment Fails: How Medicine Cares for Dying Children
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When Treatment Fails: How Medicine Cares for Dying Children
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Description du livre Hardcover. Etat : new. Hardcover. Medical care of the terminally ill is one of the most emotionally fraught and controversial issues before the public today. As medicine advances and technologies develop, end-of-life care becomes more individualized and uncertain, guided less by science and more by values and beliefs. The crux of the controversy is when to withhold or withdraw curative treatments--when is enough, enough?Political debates rage about when treatment is no longer effective;difficult cases are contested in courts; and the media devour the most sensational aspects of end-of-life care. In all this excitement and controversy, what is sadly overlooked is the extremepressure that care of the terminally ill puts on medical staff as they deal with patients and their families and make life-or-death decisions. That pressure--the psychological strain and continuing uncertainties--is magnified when the patients are children.David Bearison looks at this controversial issue from the perspective of the medical staff caring for dying children. Not just doctors, but nurses and counselors as well. By capturing their stories--as no other book has,Bearison is able to move beyond broad, abstract ideas about end-of-life care to convey the situated contexts of such care, including the complications, disagreements, frustrations, confusions, and unexpectedsetbacks.In addition to a discussion of questions surrounding whether to withhold or withdraw curative treatments, When Treatment Fails explores the crucial concerns of those medical practitioners who care for dying children: education and training, relation with one another, communicating with patients and families, and finally, coping and moving on. Ultimately, the threads connecting these themes are the great costs and rewards of this difficult work, and the lessons thatcan be drawn from the nitty-gritty experiences of medical practitioners who struggle to find the balance between trying to defeat death and trying to provide comfort. Illustrates how clinicians from different professional roles speak about the biological, psychological, spiritual, and social dimensions of caring for terminally ill patients. This book analyzes their ways of making sense and giving meaning to their difficult experiences, unearthing common and distinct themes and issues across disciplines. This item is printed on demand. Shipping may be from multiple locations in the US or from the UK, depending on stock availability. N° de réf. du vendeur 9780195156126
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When Treatment Fails: How Medicine Cares for Dying Children
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