Beyond The Pale: Folklore, Family, and the Mystery of Our Hidden Genes - Couverture rigide

Urquhart, Emily

Couverture rigide

ISBN 10 : 1443423564 ISBN 13 : 9781443423564

Editeur : HarperAvenue, 2015

A propos du livre

Présentation de l'éditeur

Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can’t help a second look at this magical child. But soon a darker current begins to emerge—something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition.

Emily, a folklore scholar and an award-winning journalist, is accustomed to understanding and processing the world through stories. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds.

Part memoir, part cultural critique, and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes and an inspiring and beautiful memoir about parenting a child with a disability—and building a better future for that child.

Revue de presse

'Beyond the Pale is a brave, thoughtful, clear, and always graceful journey through the terrifying randomness of genetics and the unexpected ways genetic anomalies canmarknotjustchildren,butallthelivesaroundthem. Bestofall,itendswitha surprise-one that will interest anyone thinking of having a family.' Ian Brown, author of The Boy in the Moon: A father's search for his disabled son; 'Beyond the Pale is a powerful story about maternal love, the long reach of family and the ways --good and evil - we react to disability.' Katherine Ashenburg, author of The Dirt on Clean: An Unsanitized History; 'A graceful, perceptive rendering of a misunderstood condition.'- Kirkus Reviews

À propos de cette édition

• Éditeur: HarperAvenue
• Date d'édition: 2015
• ISBN 10: 1443423564
• ISBN 13: 9781443423564
• Reliure: Relié
• Nombre de pages: 288