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Living with Alzheimer s: Managing Memory Loss, Identity, and Illness (Hardback)

Renee L. Beard

ISBN 10: 1479800112 / ISBN 13: 9781479800117
Edité par New York University Press, United States, 2016
Neuf(s) Etat : New Hardback
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Language: English . Brand New Book. News of Alzheimer s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don t see or hear from the people who actually have the disease. In Living with Alzheimer s, Renee L. Beard argues that the exclusively negative portrayals of Alzheimer s are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer s diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer s. Interviews with clinicians and staff from the Alzheimer s Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about self-loss, impending cures, and the economic and emotional burden to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer s actively and deliberately navigate their lives. N° de réf. du libraire AAJ9781479800117

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Détails bibliographiques

Titre : Living with Alzheimer s: Managing Memory ...

Éditeur : New York University Press, United States

Date d'édition : 2016

Reliure : Hardback

Etat du livre :New

A propos de ce titre

Synopsis :

News of Alzheimer?s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer?s, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer?s are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer?s diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected.               Beard also examines how these perceptions affect treatment for Alzheimer?s. Interviews with clinicians and staff from the Alzheimer?s Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about ?self-loss,? ?impending cures,? and the economic and emotional ?burden? to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer?s actively and deliberately navigate their lives. 

Critique:

"Based on an exceptional range of qualitative data, Living with Alzheimer's brilliantly illuminates how a primarily biomedical approach to memory loss shapes the identities and experiences of millions of newly minted patients. Equally, Renee Beard alerts us to how counter-narratives can potentially liberate the marginalized voices of those dealing with questionable diagnoses of cognitive impairment. Finely organized and conceptually rich, this book should be standard reading for anyone puzzling through the confounding distinction between normal aging and pathological forgetfulness."-David Karp,author of Speaking of Sadness "In this thorough and critical book, Renee Beard explores the medicalization, culture and experience of Alzheimer's Disease in a breadth rarely encountered in sociological analyses of illness. This work should become a benchmark in the social studies of Alzheimer's for a long time."-Peter Conrad,author of The Medicalization of Society

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