Although epilepsy is one of the most common neurological disorders, public understanding is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living.
The Institute of Medicine (IOM) was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts to the co-ordination of public awareness efforts to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families.
The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. Epilepsy Across the Spectrum is an essential resource for all epilepsy organisations and advocates, local and governmental agencies, researchers, health care professionals, people with epilepsy, as well as the public.
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