Lost Lullaby makes one think the unthinkable: how a loving parent can pray for the death of her child. It is Deborah Alecson's story of her daughter, Andrea, who was born after a full-term, uneventful pregnancy, weighing 7 pounds 11 ounces, perfectly formed and exquisitely featured. But an inexplicable accident at birth left her with massive and irreversible brain damage. On a vitality scale of one to ten, her initial reading was one. And so begins Deborah Alecson's heart-rending struggle to come to terms with two desperately conflicting and powerful emotions: her desire to nurture and love Andrea, and her desire to do everything in her power to bring about her death. Told in a mother's voice, with a simplicity and directness that heighten the intensity of the drama that unfolds, Lost Lullaby reaffirms the human dimension of what is too often an abstract and purely theoretical discussion. During the two months that Andrea spent in the Infant Intensive Care Unit, Ms. Alecson spoke with lawyers, doctors, and ethicists in an effort to understand the legal, medical and ethical implications of her plight. She recounts those discussions and describes legal cases that have a direct bearing on her own situation. Her battle--both in coming to the agonizing decision to let her child die and in convincing the medical and legal establishments to respect that decision--will engender empathy for the plight of many families, and an awareness of the need to use medical technology with restraint. It is a must-read for everyone who cares about how we make life-and-death decisions on these new medical, legal, and moral frontiers.
Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.
Deborah Golden Alecson is a freelance writer and poet who lives with her husband and son in Hartsdale, New York.
Les informations fournies dans la section « A propos du livre » peuvent faire référence à une autre édition de ce titre.
Vendeur : -OnTimeBooks-, Phoenix, AZ, Etats-Unis
Etat : good. A copy that has been read, remains in good condition. All pages are intact, and the cover is intact. The spine and cover show signs of wear. Pages can include notes and highlighting and show signs of wear, and the copy can include "From the library of" labels or previous owner inscriptions. 100% GUARANTEE! Shipped with delivery confirmation, if you're not satisfied with purchase please return item! Ships via media mail. N° de réf. du vendeur OTV.0520088700.G
Quantité disponible : 1 disponible(s)
Vendeur : Midtown Scholar Bookstore, Harrisburg, PA, Etats-Unis
Hardcover. Etat : Good. Good - Bumped and creased book with tears to the extremities, but not affecting the text block, may have remainder mark or previous owner's name - GOOD Standard-sized. N° de réf. du vendeur M0520088700Z3
Quantité disponible : 1 disponible(s)
Vendeur : Books From California, Simi Valley, CA, Etats-Unis
hardcover. Etat : Very Good. N° de réf. du vendeur mon0003528035
Quantité disponible : 2 disponible(s)
Vendeur : Dan Pope Books, West Hartford, CT, Etats-Unis
Hardcover. Etat : Fine. Etat de la jaquette : Fine. 1st Edition. University of California Press, Berkeley, 1995. First edition. First printing, with full number line to 1. Fine in a fine jacket. Quarter white cloth over pink paper-covered boards; spine lettered in silver. A tight, clean copy with a very slight spine slant. No price printed on the jacket, as issued, as common with university press titles. 8vo, 207 pp. with selected bibliography and resources for parents. Comes with archival-quality mylar dust jacket protector. Alecson's memoir of her family's experience with the prolonged treatment of a severely brain-damaged newborn, and a forceful examination of parental authority, medical ethics, and neonatal life-support decisions. N° de réf. du vendeur F800-Alecson
Quantité disponible : 1 disponible(s)
Vendeur : michael diesman, Fresh Meadows, NY, Etats-Unis
Hardcover. Etat : Near Fine. Etat de la jaquette : Fine. First Edition. Some Light Foxing On Top Edge, Otherwise In Very Nice Condition. From The Inside Flap "By Describing Her Family's Encounters With The Hypocrisy And Cruelty Surrounding The Care Of Imperiled Newborns, Alecson Adds A Powerful Voice To Those Calling For A Restoration Of The Rights Of Parents As Decision-Makers And For Compassionate Restraints On The Use Of Neonatal Life Support Technology."--Helen Harrison, Author Of The Premature Baby Book "A Searing Account Of A Mother's Encounter With A New, Frightening, And Misguided Victim Of American Medicine: The Prolongation Of The Life Of A Severely Brain-Damaged Newborn Infant Is A Good That Trumps All Other Considerations. This Gripping Story Should Remind Us All Of C. S. Lewis's Chilling Insight: "Man's Power Over Nature Is Really The Power Of Some Men Over Other Men, With Nature As Their Instrument."--William A. Silverman, M.D., Columbia University "With Disarming Honesty, Wry Wit, And Extraordinary Precision, Deborah Alecson Reveals That Surreal, Shadowy Place Known Only To Parents Who Have Delivered A Sick Baby. Lost Lullaby Is An Act Of Faith, And One Can See Its Creator Growing Wiser As Her Story Unfolds--To Give The Reader Not Only Indispensable Information But Also Solace And Strength."--Roberta Silman, Author Of Blood Relations, Beginning The World Again, And Other Novels From The Back Cover "By Describing Her Family's Encounters With The Hypocrisy And Cruelty Surrounding The Care Of Imperiled Newborns, Alecson Adds A Powerful Voice To Those Calling For A Restoration Of The Rights Of Parents As Decision- Makers And For Compassionate Restraints On The Use Of Neonatal Life Support Technology." (Helen Harrison, Author Of The Premature Baby Book) About The Author Deborah Golden Alecson Is A Freelance Writer And Poet Who Lives With Her Husband And Son In Hartsdale, New York. N° de réf. du vendeur 061379
Quantité disponible : 1 disponible(s)
Vendeur : Augustine Funnell Books, Fredericton, NB, Canada
Hardcover. Etat : Very Good. Etat de la jaquette : Very Good. First Edition. The story of Alecson's perfectly formed baby girl, born "with massive irreversible brain damage" from oxygen deprivation while in the womb, and the subsequent moral and legal battle by the parents to let their baby die rather than be kept alive through technological means. Pink boards w/cream cloth backstrip, silver spine lettering, 207 pages (including selected bibliography and list of resources for parents). Moderate general wear, light soil, in like dust jacket. Size: 8vo - over 7¾ - 9¾" tall. Signed by Author(s). Book. N° de réf. du vendeur 016841
Quantité disponible : 1 disponible(s)