Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder's memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband's diagnosis.
The book is about the gritty and glorious substances of life--how illness and health, faith and doubt, grief and acceptance all flow together in the river of change. It leads each of us to a greater awareness of our own life experiences.
Study questions are included. They are not only a tool for understanding dementia or the role of caregivers but can bring greater self-awareness to every person's life experience.
LBD is not a rare disease. It affects an estimated 1.3 million individuals and their families in the United States. It affected the author Ginnie Horst Burkholder's family before the age of 50. Learn more from the Lewy Body Dementia Association at www.lbda.org. Read more of Ginnie's writing and other Essays on LBD Caregiving by clicking here.
A great companion resource to Relentless Goodbye is the book Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief by Pauline Boss, PhD. Click here for more information.
Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.
Ginnie Horst Burkholder lives in Canton, Ohio and has previously published stories, poems, and essays. She has been her husband Nelson's primary caregiver since 1997 when he was diagnosed with Lewy body dementia. She visits Nelson frequently since his admission to a nursing home in 2010 and continues to be very involved in his care.
Les informations fournies dans la section « A propos du livre » peuvent faire référence à une autre édition de ce titre.
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Vendeur : Mad Hatter, West Kelowna, BC, Canada
Etat : Very Good+. Tight, clean, and unmarked-" Ginnie Horst Burkholder shares from the heart about caring for a spouse who is slowly slipping away to Lewy body dementia (LBD). Burkholder's memoir reveals how she handles the constant challenges through humor, love, commitment, and faith. At the same time, she does not gloss over the loss, pain, and loneliness on this emotional roller coaster ride that invaded her marriage and family following her husband's diagnosis. The book is about the gritty and glorious substances of life--how illness and health, faith and doubt, grief and acceptance all flow together in the river of change. It leads each of us to a greater awareness of our own life experiences. Study questions are included. They are not only a tool for understanding dementia or the role of caregivers but can bring greater self-awareness to every person's life experience. From the Author: From the Introduction: This book didn't start out to be a book. My writing was simply my tool for processing the changes that were mandated by LBD (Lewis body dementia) and the emotions they triggered as dreams and expectations shattered and fell away. The writing was my voice for truth as I experienced it on any given day. I needed to give voice to the whole story to the reiterated loss, ongoing grief, underlying pain, and the constant struggle in and out of acceptance. I also needed to combat the isolation that creeps into the life of a caregiver. I began to post my writing on the Lewy Body Dementia Association website and received numerous responses from other caregivers over the years. Some of these are included in this book. The stories and reflections in this book repeat the themes of loss, grief, and the struggle for acceptance. That is what a relentless goodbye is. It means grieving the loss of today and coming to terms with a different expectation of your spouse. Then, just when you've figured out how to cope, you start all over because now there is something new falling away in this snail-paced, growing-down goodbye. I have learned so much and grown in ways I value and couldn't have imagined. Still, this journey is a hard teacher. I've heard people say about difficult experiences that they wouldn't change a thing. Maybe someday I will say that. I just know that I'm not there yet." --Ginnie Horst Burkholder. N° de réf. du vendeur 16150
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