Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation - Couverture rigide

Livre 37 sur 37: Cambridge Bioethics and Law

Postan, Emily

 
9781108483742: Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation
Couverture rigide
ISBN 10 : 1108483747 ISBN 13 : 9781108483742
Editeur : Cambridge University Press, 2022

Synopsis

Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.

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À propos de l'auteur

Emily Postan is a chancellor's fellow in Bioethics at the University of Edinburgh Law School and a deputy director of the J Kenyon Mason Institute for Medicine Life Sciences and the Law. Her principal research interests lie in the ethical and regulatory implications of the impacts of health technologies and health data on our identities, group memberships, and relationships with others. Her wider research includes work in neuroethics, reproductive ethics, and regulation of health research.

Les informations fournies dans la section « A propos du livre » peuvent faire référence à une autre édition de ce titre.

Éditeur
Cambridge University Press
Date d'édition
2022
Langue
anglais
ISBN 10 
1108483747
ISBN 13 
9781108483742
Reliure
Relié
Nombre de pages
250
Coordonnées du fabricant
non disponible
Personne responsable
Avery
https://www.avery.fr/

chemin des peupliers 27
Dardilly
France

Autres éditions populaires du même titre

9781108718196: Embodied Narratives

Edition présentée

ISBN 10 :  1108718191 ISBN 13 :  9781108718196
Editeur : Cambridge University Press, 2023
Couverture souple