Articles liés à Extraordinary Gifts, Unique Challenges: Williams Syndrome

Extraordinary Gifts, Unique Challenges: Williams Syndrome - Couverture souple

Self Ph.D., Michelle; Coggshall, Vanessa; Roach, Tess

 
9781499101089: Extraordinary Gifts, Unique Challenges: Williams Syndrome

Synopsis

Affecting 1 in 10,000 people worldwide, Williams syndrome is a genetic condition caused by a spontaneous deletion of one pair of a few dozen genes on chromosome 7. Individuals with Williams syndrome often have severe cardiovascular issues, developmental delays, and difficulties living independently. At the same time, they generally have outgoing personalities, enormous empathy, and a strong affinity for music. Extraordinary Gifts, Unique Challenges is a collection of essays written by parents, family, and friends of children with Williams syndrome. In their own words, they tell stories of challenges and triumphs. They share their own heartaches and moments of bliss. In addition, nine adults with Williams syndrome give advice to younger people with the diagnosis, while reflecting on what their own parents did that helped them the most. The collection is poignant, funny, authentic, and heart-warming. It will make you recognize the gifts and challenges in your own children, whether they have Williams syndrome or not. Please note that all proceeds from the sale of this book go to the Williams Syndrome Association. Thank you for supporting a wonderful cause!

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À propos de l'auteur

This beautiful anthology of more than fifty essays was written by parents, family, and friends of children with Williams syndrome. In addition, nine adults with Williams syndrome contributed to the book with invaluable advice for children and parents alike. These essays were compiled and edited by three mothers of children with Williams syndrome: Michelle Self, Vanessa Coggshall, and Tess Roach. Currently on the Williams Syndrome Association Board of Trustees, Michelle Self is an education consultant who helps others break down tasks and get the educational help they need. Vanessa Coggshall is an author and blogger who is writing a memoir about becoming a mom to a child with special needs. Tess Roach is a freelance editor who, above all, enjoys spending time with her family.

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