This book is about a very special relationship among three brothers. Even though Simon, their baby brother, has died, his older brothers continue to have conversations about him. Simon will always be their brother and part of their family. Expressing their feelings and looking for their "Simon Signs" builds an even deeper connection with Simon. The Crosier family awaits their reunion with Simon. Until then, their ministry is to speak for those who cannot speak. Their message is clear that all life, regardless of syndrome or diagnosis, possesses inherent dignity and value. SOFT-Support Organization for Trisomy 18, 13, and related disorders has become family for the Crosiers. Being able to celebrate every life no matter how long or short is vital to families like Simon's. The true quality of life is measured by love.
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Sheryl Crosier, MA, MBA, is the mother of Simon who had Trisomy 18, otherwise known as Edwards Syndrome, and lived for 88.5 days. She serves on the Board of Directors for SOFT-Support Organization for Trisomy 18, 13, and related disorders. Sheryl authored the book I'm not a Syndrome-My Name is Simon, which was published in August, 2012. Sheryl's speaking engagements have included health care professional conferences, special school districts and faith based communities. Simon's story was featured in the 2014 documentary "Labeled." Sheryl and her husband, Scott, and their children, Samuel, Sean and Sabella, reside in St. Louis, Missouri. For media interviews, publications, and educational resources on trisomy, visit www.simonismyname.com
Les informations fournies dans la section « A propos du livre » peuvent faire référence à une autre édition de ce titre.
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Paperback. Etat : new. Paperback. This book is about a very special relationship among three brothers. Even though Simon, their baby brother, has died, his older brothers continue to have conversations about him. Simon will always be their brother and part of their family. Expressing their feelings and looking for their "Simon Signs" builds an even deeper connection with Simon. The Crosier family awaits their reunion with Simon. Until then, their ministry is to speak for those who cannot speak. Their message is clear that all life, regardless of syndrome or diagnosis, possesses inherent dignity and value. SOFT-Support Organization for Trisomy 18, 13, and related disorders has become family for the Crosiers. Being able to celebrate every life no matter how long or short is vital to families like Simon's. The true quality of life is measured by love. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. N° de réf. du vendeur 9781502736673
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