Learning to Live with Huntington's Disease: One Family's Story - Couverture souple

Sulaiman, Sandy

Couverture souple

ISBN 10 : 1843104873 ISBN 13 : 9781843104872

Editeur : Jessica Kingsley Publishers, 2007

Synopsis

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

A propos du livre

À propos de l?auteur

Sandy Sulaiman has been a journalist for 20 years, with articles published in most UK national newspapers, as well as specialist publications and women's magazines. She was diagnosed with Huntington's disease seven years ago. Sandy lives near Banbury, Oxfordshire, UK.

Détails de l'édition

• Éditeur: Jessica Kingsley Publishers
• Date d'édition: 2007
• Langue: anglais
• ISBN 10: 1843104873
• ISBN 13: 9781843104872
• Reliure: Broché
• Numéro d'édition: 1
• Nombre de pages: 176
• Coordonnées du fabricant: non disponible
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