Genetic Information - Values and Rights: The Morality of Presymptomatic Genetic Testing - Couverture souple

Juth, Niklas

 
9783846588819: Genetic Information - Values and Rights: The Morality of Presymptomatic Genetic Testing
Couverture souple
ISBN 10 : 3846588814 ISBN 13 : 9783846588819
Editeur : LAP LAMBERT Academic Publishing, 2012

Synopsis

This book discusses the moral concerns due to the increasing possibilities to predict individuals’ health on the basis of genetic testing. To what extent should such testing be performed? Which parties should be allowed to gain access to the results of such testing? The scope and limits of patients’ right to know and not know are presented. It is also argued that patients’ value of presymptomatic genetic testing ultimately rests on autonomy and subjective well-being. Moreover, a conception of autonomy is developed, which is useful to analyse the novel idea in this area that autonomy is a value that should be promoted. Regarding the question of blood relatives’ rights to genetic information, it is argued that we should generally leave the decision to inform relatives to the tested person. The idea that genetic information belongs to a new paradigm of medical information that is communal in its nature is criticized. Broader societal questions regarding e.g. insurance companies’ right to genetic information are also discussed. It is argued that the development of genetics strengthens the need for and defence of a comprehensive welfare state.

Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.

Présentation de l'éditeur

This book discusses the moral concerns due to the increasing possibilities to predict individuals’ health on the basis of genetic testing. To what extent should such testing be performed? Which parties should be allowed to gain access to the results of such testing? The scope and limits of patients’ right to know and not know are presented. It is also argued that patients’ value of presymptomatic genetic testing ultimately rests on autonomy and subjective well-being. Moreover, a conception of autonomy is developed, which is useful to analyse the novel idea in this area that autonomy is a value that should be promoted. Regarding the question of blood relatives’ rights to genetic information, it is argued that we should generally leave the decision to inform relatives to the tested person. The idea that genetic information belongs to a new paradigm of medical information that is communal in its nature is criticized. Broader societal questions regarding e.g. insurance companies’ right to genetic information are also discussed. It is argued that the development of genetics strengthens the need for and defence of a comprehensive welfare state.

Biographie de l'auteur

Niklas Juth is a senior lecturer and researcher in medical ethics at Karolinska Institutet. His main research interests are in ethics and bioethics, genethics, and the intersection between political philosophy and medical ethics, e.g. autonomy and justice in health care.

Les informations fournies dans la section « A propos du livre » peuvent faire référence à une autre édition de ce titre.

Éditeur
LAP LAMBERT Academic Publishing
Date d'édition
2012
Langue
anglais
ISBN 10 
3846588814
ISBN 13 
9783846588819
Reliure
Broché
Nombre de pages
484
Coordonnées du fabricant
non disponible
Personne responsable
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