Articles liés à The Alpers Disease Parent's Sourcebook: Causes,...
Synopsis
About This Guide
The Alpers Disease Parents Sourcebook is the essential, compassionate guide for families navigating the life-changing diagnosis of Alpers disease. Written in clear, jargon-free language, this comprehensive resource empowers parents and caregivers at every stage of the journey—from the earliest symptoms and confusing testing process to daily care, emotional support, and long-term planning.
Inside you’ll discover:
- What Alpers disease is and why mitochondria matter for your child’s health
- Clear explanations of genetics and inheritance, including POLG mutations and family risk
- How to recognize key symptoms, prepare for appointments, and advocate for your child
- Detailed, parent-tested advice for managing seizures, feeding, regression, and more
- Guidance on assembling a care team, navigating school and community resources, and supporting siblings
- Up-to-date research, glossary of terms, and an appendix of resources, mental health contacts, and patient advocacy organizations
If your family is facing Alpers disease, this sourcebook can be your companion and your toolkit for every twist and turn ahead.
ABOUT THE AUTHOR
Steph Whitehouse has been a dedicated health science writer for over 20 years, bringing expertise and compassion to her work. With an undergraduate degree in Healthcare Administration and a master’s degree in Teaching, Steph combines her knowledge and passion for helping people lead healthier lives. Her approachable writing style makes complex health issues clear and accessible for all readers. Steph is also a Fellow of the Life Management Institute (FLMI), further showcasing her commitment to excellence and professionalism.
Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.
Résultats de recherche pour The Alpers Disease Parent's Sourcebook: Causes,...
Image d'archives
The Alpers Disease Parent's Sourcebook (Paperback)
impression à la demandeVendeur : Grand Eagle Retail, Bensenville, IL, Etats-Unis
Évaluation du vendeur 5 sur 5 étoiles
Paperback. Etat : new. Paperback. About This GuideThe Alpers Disease Parents Sourcebook is the essential, compassionate guide for families navigating the life-changing diagnosis of Alpers disease. Written in clear, jargon-free language, this comprehensive resource empowers parents and caregivers at every stage of the journey-from the earliest symptoms and confusing testing process to daily care, emotional support, and long-term planning.Inside you'll discover: What Alpers disease is and why mitochondria matter for your child's healthClear explanations of genetics and inheritance, including POLG mutations and family riskHow to recognize key symptoms, prepare for appointments, and advocate for your childDetailed, parent-tested advice for managing seizures, feeding, regression, and moreGuidance on assembling a care team, navigating school and community resources, and supporting siblingsUp-to-date research, glossary of terms, and an appendix of resources, mental health contacts, and patient advocacy organizationsEvery chapter is dedicated to making the complex science understandable while addressing the profound emotional and daily life challenges of this rare mitochondrial disorder. With first-hand insights, evidence-based recommendations, and practical checklists, this guide helps parents feel less alone, more confident, and equipped to make informed decisions.If your family is facing Alpers disease, this sourcebook can be your companion and your toolkit for every twist and turn ahead. ABOUT THE AUTHOR Steph Whitehouse has been a dedicated health science writer for over 20 years, bringing expertise and compassion to her work. With an undergraduate degree in Healthcare Administration and a master's degree in Teaching, Steph combines her knowledge and passion for helping people lead healthier lives. Her approachable writing style makes complex health issues clear and accessible for all readers. Steph is also a Fellow of the Life Management Institute (FLMI), further showcasing her commitment to excellence and professionalism. This item is printed on demand. Shipping may be from multiple locations in the US or from the UK, depending on stock availability. N° de réf. du vendeur 9798267837668
Acheter neuf
EUR 20,44
Livraison gratuite
Expédition nationale : Etats-Unis
Expédition nationale : Etats-Unis
Quantité disponible : 1 disponible(s)
Image d'archives
The Alpers Disease Parent's Sourcebook: Causes, Tests, and Treatment Options
impression à la demandeVendeur : California Books, Miami, FL, Etats-Unis
Évaluation du vendeur 4 sur 5 étoiles
Etat : New. Print on Demand. N° de réf. du vendeur I-9798267837668
Acheter neuf
EUR 20,45
Livraison gratuite
Expédition nationale : Etats-Unis
Expédition nationale : Etats-Unis
Quantité disponible : Plus de 20 disponibles
Image d'archives
The Alpers Disease Parent's Sourcebook
Vendeur : PBShop.store US, Wood Dale, IL, Etats-Unis
Évaluation du vendeur 5 sur 5 étoiles
PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000. N° de réf. du vendeur L2-9798267837668
Acheter neuf
EUR 21,71
Livraison gratuite
Expédition nationale : Etats-Unis
Expédition nationale : Etats-Unis
Quantité disponible : Plus de 20 disponibles
Image d'archives
The Alpers Disease Parent's Sourcebook
Vendeur : PBShop.store UK, Fairford, GLOS, Royaume-Uni
Évaluation du vendeur 5 sur 5 étoiles
PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000. N° de réf. du vendeur L2-9798267837668
Acheter neuf
EUR 20,79
Expédition à EUR 3,85
Expédition depuis Royaume-Uni vers Etats-Unis
Expédition depuis Royaume-Uni vers Etats-Unis
Quantité disponible : Plus de 20 disponibles
Image d'archives
The Alpers Disease Parent's Sourcebook (Paperback)
impression à la demandeVendeur : CitiRetail, Stevenage, Royaume-Uni
Évaluation du vendeur 5 sur 5 étoiles
Paperback. Etat : new. Paperback. About This GuideThe Alpers Disease Parents Sourcebook is the essential, compassionate guide for families navigating the life-changing diagnosis of Alpers disease. Written in clear, jargon-free language, this comprehensive resource empowers parents and caregivers at every stage of the journey-from the earliest symptoms and confusing testing process to daily care, emotional support, and long-term planning.Inside you'll discover: What Alpers disease is and why mitochondria matter for your child's healthClear explanations of genetics and inheritance, including POLG mutations and family riskHow to recognize key symptoms, prepare for appointments, and advocate for your childDetailed, parent-tested advice for managing seizures, feeding, regression, and moreGuidance on assembling a care team, navigating school and community resources, and supporting siblingsUp-to-date research, glossary of terms, and an appendix of resources, mental health contacts, and patient advocacy organizationsEvery chapter is dedicated to making the complex science understandable while addressing the profound emotional and daily life challenges of this rare mitochondrial disorder. With first-hand insights, evidence-based recommendations, and practical checklists, this guide helps parents feel less alone, more confident, and equipped to make informed decisions.If your family is facing Alpers disease, this sourcebook can be your companion and your toolkit for every twist and turn ahead. ABOUT THE AUTHOR Steph Whitehouse has been a dedicated health science writer for over 20 years, bringing expertise and compassion to her work. With an undergraduate degree in Healthcare Administration and a master's degree in Teaching, Steph combines her knowledge and passion for helping people lead healthier lives. Her approachable writing style makes complex health issues clear and accessible for all readers. Steph is also a Fellow of the Life Management Institute (FLMI), further showcasing her commitment to excellence and professionalism. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. N° de réf. du vendeur 9798267837668
Acheter neuf
EUR 24,68
Expédition à EUR 43,28
Expédition depuis Royaume-Uni vers Etats-Unis
Expédition depuis Royaume-Uni vers Etats-Unis
Quantité disponible : 1 disponible(s)