Hereditary Spastic Paraplegia (HSP) is a rare, progressive neurodegenerative disorder primarily characterized by spasticity and weakness in the lower limbs. Estimates suggest that HSP affects approximately 2 to 6 individuals per 100,000 people worldwide.
While HSP is a rare condition, its impact varies across different populations and genetic subtypes. Ongoing research and improved diagnostic methods are essential to understand the global prevalence better and to provide appropriate care and support for affected individuals. Getting a diagnosis is often a long, drawn-out procedure and fraught with difficulties.
From information on how to navigate an initial diagnosis to management, treatment, exercise, and daily life, this book aims to help both newly diagnosed and long-term HSP patients understand the condition and how to manage it with a view to living well.
A Guide to Hereditary Spastic Paraplegia aims to explain and demystify this little-known, rare neurological disease. Aimed primarily at those with HSP, their loved ones, and caregivers, it is a comprehensive guide to the condition, the diagnostic process, treatments, symptom management, and how to live well with HSP.
Whether yo are newly diagnosed, a long-term patient, or a clinician seeking deeper understanding, this book demystifies every step of the journey. Inside, you will find clear guidance on:
The author, who lives with HSP, wrote the book in collaboration with the UK Hereditary Spastic Paraplegia Support Group. All proceeds from the book will benefit the Group by continuing to support patients and families and by funding vital research.
Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.
Vendeur : Grand Eagle Retail, Bensenville, IL, Etats-Unis
Paperback. Etat : new. Paperback. Hereditary Spastic Paraplegia (HSP) is a rare, progressive neurodegenerative disorder primarily characterized by spasticity and weakness in the lower limbs. Estimates suggest that HSP affects approximately 2 to 6 individuals per 100,000 people worldwide. While HSP is a rare condition, its impact varies across different populations and genetic subtypes. Ongoing research and improved diagnostic methods are essential to understand the global prevalence better and to provide appropriate care and support for affected individuals. Getting a diagnosis is often a long, drawn-out procedure and fraught with difficulties. From information on how to navigate an initial diagnosis to management, treatment, exercise, and daily life, this book aims to help both newly diagnosed and long-term HSP patients understand the condition and how to manage it with a view to living well.A Guide to Hereditary Spastic Paraplegia aims to explain and demystify this little-known, rare neurological disease. Aimed primarily at those with HSP, their loved ones, and caregivers, it is a comprehensive guide to the condition, the diagnostic process, treatments, symptom management, and how to live well with HSP. Whether yo are newly diagnosed, a long-term patient, or a clinician seeking deeper understanding, this book demystifies every step of the journey. Inside, you will find clear guidance on: The diagnostic process and what to expectTreatments and proactive symptom managementPractical strategies for daily living and independenceNavigating medical appointments with confidenceThe author, who lives with HSP, wrote the book in collaboration with the UK Hereditary Spastic Paraplegia Support Group. All proceeds from the book will benefit the Group by continuing to support patients and families and by funding vital research. This item is printed on demand. Shipping may be from multiple locations in the US or from the UK, depending on stock availability. N° de réf. du vendeur 9798282241358
Quantité disponible : 1 disponible(s)
Vendeur : California Books, Miami, FL, Etats-Unis
Etat : New. Print on Demand. N° de réf. du vendeur I-9798282241358
Quantité disponible : Plus de 20 disponibles
Vendeur : PBShop.store US, Wood Dale, IL, Etats-Unis
PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000. N° de réf. du vendeur L2-9798282241358
Quantité disponible : Plus de 20 disponibles
Vendeur : PBShop.store UK, Fairford, GLOS, Royaume-Uni
PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000. N° de réf. du vendeur L2-9798282241358
Quantité disponible : Plus de 20 disponibles
Vendeur : CitiRetail, Stevenage, Royaume-Uni
Paperback. Etat : new. Paperback. Hereditary Spastic Paraplegia (HSP) is a rare, progressive neurodegenerative disorder primarily characterized by spasticity and weakness in the lower limbs. Estimates suggest that HSP affects approximately 2 to 6 individuals per 100,000 people worldwide. While HSP is a rare condition, its impact varies across different populations and genetic subtypes. Ongoing research and improved diagnostic methods are essential to understand the global prevalence better and to provide appropriate care and support for affected individuals. Getting a diagnosis is often a long, drawn-out procedure and fraught with difficulties. From information on how to navigate an initial diagnosis to management, treatment, exercise, and daily life, this book aims to help both newly diagnosed and long-term HSP patients understand the condition and how to manage it with a view to living well.A Guide to Hereditary Spastic Paraplegia aims to explain and demystify this little-known, rare neurological disease. Aimed primarily at those with HSP, their loved ones, and caregivers, it is a comprehensive guide to the condition, the diagnostic process, treatments, symptom management, and how to live well with HSP. Whether yo are newly diagnosed, a long-term patient, or a clinician seeking deeper understanding, this book demystifies every step of the journey. Inside, you will find clear guidance on: The diagnostic process and what to expectTreatments and proactive symptom managementPractical strategies for daily living and independenceNavigating medical appointments with confidenceThe author, who lives with HSP, wrote the book in collaboration with the UK Hereditary Spastic Paraplegia Support Group. All proceeds from the book will benefit the Group by continuing to support patients and families and by funding vital research. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. N° de réf. du vendeur 9798282241358
Quantité disponible : 1 disponible(s)
Vendeur : AHA-BUCH GmbH, Einbeck, Allemagne
Taschenbuch. Etat : Neu. Neuware - Hereditary Spastic Paraplegia (HSP) is a rare, progressive neurodegenerative disorder primarily characterized by spasticity and weakness in the lower limbs. Estimates suggest that HSP affects approximately 2 to 6 individuals per 100,000 people worldwide. While HSP is a rare condition, its impact varies across different populations and genetic subtypes. Ongoing research and improved diagnostic methods are essential to understand the global prevalence better and to provide appropriate care and support for affected individuals. Getting a diagnosis is often a long, drawn-out procedure and fraught with difficulties. From information on how to navigate an initial diagnosis to management, treatment, exercise, and daily life, this book aims to help both newly diagnosed and long-term HSP patients understand the condition and how to manage it with a view to living well.A Guide to Hereditary Spastic Paraplegia aims to explain and demystify this little-known, rare neurological disease. Aimed primarily at those with HSP, their loved ones, and caregivers, it is a comprehensive guide to the condition, the diagnostic process, treatments, symptom management, and how to live well with HSP. Whether yo are newly diagnosed, a long-term patient, or a clinician seeking deeper understanding, this book demystifies every step of the journey. Inside, you will find clear guidance on: - The diagnostic process and what to expect- Treatments and proactive symptom management- Practical strategies for daily living and independence- Navigating medical appointments with confidenceThe author, who lives with HSP, wrote the book in collaboration with the UK Hereditary Spastic Paraplegia Support Group. All proceeds from the book will benefit the Group by continuing to support patients and families and by funding vital research. N° de réf. du vendeur 9798282241358
Quantité disponible : 2 disponible(s)