Synopsis
Fibrodysplasia ossificans progressiva, or FOP, is a rare genetic condition that affects one in one million people. This condition causes muscles and connective tissues to gradually turn into bone. Symptoms usually begin during childhood and can restrict movement. "Resilient As Always" aims to support these brave children emotionally during their FOP journey. We hope to inspire resilience and hope for these courageous kids.
Endorsement
"Resilience and Hope. That is the message that Danielle and Dean Wang portray in their beautifully illustrated parable “Resilient As Always.” Waiting for a cure is not an answer for Lily or her family; her life must be lived as a cure is desperately pursued. Her struggle against FOP - one of life’s rarest & and most disabling conditions - and the love of her family show us that diseases are not just biological processes; they are human experiences. As someone like Lily told me long ago, 'I may have FOP, but it’s not who I am.'"
--- Frederick S. Kaplan, M.D., Philadelphia
About FlairCare
Danielle Wang and Dean Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair!
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Résultats de recherche pour Resilient As Always
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Resilient As Always
impression à la demandeVendeur : California Books, Miami, FL, Etats-Unis
Évaluation du vendeur 4 sur 5 étoiles
Etat : New. Wang, Danielle (illustrateur). Print on Demand. N° de réf. du vendeur I-9798335956048
Acheter neuf
EUR 18,98
Livraison gratuite
Expédition nationale : Etats-Unis
Expédition nationale : Etats-Unis
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Resilient As Always
Vendeur : PBShop.store UK, Fairford, GLOS, Royaume-Uni
Évaluation du vendeur 5 sur 5 étoiles
PAP. Etat : New. Wang, Danielle (illustrateur). New Book. Shipped from UK. Established seller since 2000. N° de réf. du vendeur L2-9798335956048
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EUR 19,13
Expédition à EUR 3,85
Expédition depuis Royaume-Uni vers Etats-Unis
Expédition depuis Royaume-Uni vers Etats-Unis
Quantité disponible : Plus de 20 disponibles
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Resilient As Always (Paperback)
impression à la demandeVendeur : CitiRetail, Stevenage, Royaume-Uni
Évaluation du vendeur 5 sur 5 étoiles
Paperback. Etat : new. Wang, Danielle (illustrateur). Paperback. Fibrodysplasia ossificans progressiva, or FOP, is a rare genetic condition that affects one in one million people. This condition causes muscles and connective tissues to gradually turn into bone. Symptoms usually begin during childhood and can restrict movement. "Resilient As Always" aims to support these brave children emotionally during their FOP journey. We hope to inspire resilience and hope for these courageous kids.Endorsement"Resilience and Hope. That is the message that Danielle and Dean Wang portray in their beautifully illustrated parable "Resilient As Always." Waiting for a cure is not an answer for Lily or her family; her life must be lived as a cure is desperately pursued. Her struggle against FOP - one of life's rarest & and most disabling conditions - and the love of her family show us that diseases are not just biological processes; they are human experiences. As someone like Lily told me long ago, 'I may have FOP, but it's not who I am.'"--- Frederick S. Kaplan, M.D., PhiladelphiaAbout FlairCareDanielle Wang and Dean Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair! This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability. N° de réf. du vendeur 9798335956048
Acheter neuf
EUR 22,92
Expédition à EUR 43,35
Expédition depuis Royaume-Uni vers Etats-Unis
Expédition depuis Royaume-Uni vers Etats-Unis
Quantité disponible : 1 disponible(s)