One Hundred Letters: If patients can learn about Primary Hyperparathyroidism, then why can’t medical professionals? - Couverture souple

Powell, Sallie J

Couverture souple

ISBN 13 : 9798744849702

Editeur : Independently published, 2021

Synopsis

Primary Hyperparathyroidism (PHPT) is known and documented to be a very common endocrine disease. It is reported to be the third most common endocrine disease, after diabetes and hypothyroidism, (we suspect it is possibly the most common), yet many doctors and endocrinologists fail to recognise the symptoms, have a poor understanding of which blood tests to request, and even how to understand the results. Outdated literature and many online sites state PHPT causes no, or few symptoms. We expect they were written by people who have not experienced first-hand how debilitating the symptoms can be. Even people who think they have no symptoms, but were diagnosed with high calcium levels, are amazed after surgery at how much better their quality of life becomes. Many patients are left untreated to suffer year upon year from this progressive disease. Patients’ families also suffer the consequences. We would like to set the record straight regarding PHPT, and how it feels to be forced to live with it year after year, knowing there is a simple surgical cure called a parathyroidectomy, performed by experienced parathyroid surgeons.The letters in this book were written by members of Hyperparathyroid UK Action4Change, to NHS England, Wales, Scotland, Ireland, Northern Ireland, and RCGP on 15th March 2021, asking for a review of education and practice in primary and secondary care, as well as an urgent review of NICE Guidelines that were first published 23rd May 2019. The guideline committee largely ignored the recommendations of NHS patients (members of Hyperparathyroid UK Action4Change, and registered stakeholders) in over nine hundred comments submitted during the two public consultations. The result of their decision is that widespread suffering, and medical ignorance regarding recognition and treatment of primary hyperparathyroidism continues.

Détails de l'édition

• Éditeur: Independently published
• Date d'édition: 2021
• Langue: anglais
• ISBN 13: 9798744849702
• Reliure: Broché
• Nombre de pages: 265
• Coordonnées du fabricant: Manufactured by Amazon on behalf of the author; https://www.amazon.fr/hz/contact-us; ; c/o Amazon Media EU S.à.r.l., 38 Avenue John F. Kennedy; Luxembourg; L-1855; Luxembourg