Articles liés à Fight!: One Family's Battle with The Butterfly...

Fight!: One Family's Battle with The Butterfly Disease - Couverture souple

Kalynka-Brown, Valerie

 
9781989840887: Fight!: One Family's Battle with The Butterfly Disease
Couverture souple
ISBN 10 : 1989840884 ISBN 13 : 9781989840887
Editeur : Big Moose Publishing, 2025

Synopsis

She never stopped fighting...

Valerie Kalynka-Brown’s sister, Marlene, was born with an extremely rare skin disease, Epidermolysis Bullosa (EB). EB is called The Butterfly Disease because if you touch a butterfly, it’s wings are either damaged or it dies. The skin of those with EB, if touched, causes their skin to blister or peel away, and if handled too aggressively, can even cause death. Their skin is as delicate as a butterfly’s.

Marlene had the most severe known form of EB. Despite this, she fought to live as normally and as fully as possible. She did things doctors told her she never would be able to such as live on her own, drive a car, and ride horses.

She didn’t do it alone. Without the love, sacrifice and dedication of her family, Marlene wouldn’t have been able to live as fully as she did.

This book is for anyone who is living with or has a loved one who is living with a debilitating disease. While there will be many tough times, there is also hope, resilience, blessings and triumphs. Marlene showed her family, friends, and the world what is possible when you refuse to accept the limitations others try to put on you.

Les informations fournies dans la section « Synopsis » peuvent faire référence à une autre édition de ce titre.

Éditeur
Big Moose Publishing
Date d'édition
2025
Langue
anglais
ISBN 10 
1989840884
ISBN 13 
9781989840887
Reliure
Broché
Nombre de pages
81
Coordonnées du fabricant
Manufactured by Amazon on behalf of the author
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