Isbn: 9781989840887 - fight!: one family's battle with the butterfly disease (14 résultats)

Etat : New.

Paperback or Softback. Etat : New. Fight. Book.

Etat : New.

Etat : As New. Unread book in perfect condition.

PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000.

PAP. Etat : New. New Book. Shipped from UK. Established seller since 2000.

Etat : New.

Etat : As New. Unread book in perfect condition.

Taschenbuch. Etat : Neu. Neuware - She never stopped fighting.Valerie Kalynka-Brown's sister, Marlene, was born with an extremely rare skin disease, Epidermolysis Bullosa (EB). EB is called The Butterfly Disease because if you touch a butterfly, it's wings are either damaged or it dies. The skin of those with EB, if touched, causes their skin to blister or peel away, and if handled too aggressively, can even cause death. Their skin is as delicate as a butterfly's.Marlene had the most severe known form of EB. Despite this, she fought to live as normally and as fully as possible. She did things doctors told her she never would be able to such as live on her own, drive a car, and ride horses. She didn't do it alone. Without the love, sacrifice and dedication of her family, Marlene wouldn't have been able to live as fully as she did. This book is for anyone who is living with or has a loved one who is living with a debilitating disease. While there will be many tough times, there is also hope, resilience, blessings and triumphs. Marlene showed her family, friends, and the world what is possible when you refuse to accept the limitations others try to put on you.…

Etat : New. Print on Demand.

Etat : New. Print on Demand.

Etat : New. This item is printed on demand. New copy - Usually dispatched within 5-9 working days.

Etat : New. PRINT ON DEMAND.

Paperback. Etat : new. Paperback. She never stopped fighting.Valerie Kalynka-Brown's sister, Marlene, was born with an extremely rare skin disease, Epidermolysis Bullosa (EB). EB is called The Butterfly Disease because if you touch a butterfly, it's wings are either damaged or it dies. The skin of those with EB, if touched, causes their skin to blister or peel away, and if handled too aggressively, can even cause death. Their skin is as delicate as a butterfly's.Marlene had the most severe known form of EB. Despite this, she fought to live as normally and as fully as possible. She did things doctors told her she never would be able to such as live on her own, drive a car, and ride horses. She didn't do it alone. Without the love, sacrifice and dedication of her family, Marlene wouldn't have been able to live as fully as she did. This book is for anyone who is living with or has a loved one who is living with a debilitating disease. While there will be many tough times, there is also hope, resilience, blessings and triumphs. Marlene showed her family, friends, and the world what is possible when you refuse to accept the limitations others try to put on you. The inspirational account of a woman living with Epidermolysis Bullosa (EB) - a rare skin disease. She was told she shouldn't have lived to the age of five, but she lived to the age of 37, fulfilling her dreams. This item is printed on demand. Shipping may be from our UK warehouse or from our Australian or US warehouses, depending on stock availability.…